Ruby is an incredibly bubbly, confident and active 10 Year old who is one of our recipients. We at Rally for a Cause often refer to her as super Ruby! In February Ruby and her family were part of our Dunga Derby Teams Meeting. Ruby told the crowd how Rally for a Cause supported her family. She spoke beautifully and should be proud of her outstanding efforts in being an active part of her community raising awareness of her condition.

Here is Ruby’s Story:

My name is Ruby Adams and I’m 10 Years Old. Let me tell you a little bit about me!

I’m pretty lucky! I have 2 Mums AND a Dad! I also have three sisters, two brothers and an Assistance Dog Called Kilani.

I’m in Year 5 and I love Taekwondo, Dancing and writing stories. I was born with a condition called Ehler Danlos Syndrome. It’s a pretty big name so I like to shorten it to EDS. EDS is a connective tissue disorder which affects just about all of my body, except for my bones. It basically means that my body is a lot more stretchy than yours.

When I was born, I had a very big hole in my Diaphragm and had to have lots of surgeries to help me get better. Sometimes by body finds it pretty hard to eat food through my mouth, so I have a gastrostomy button to help me eat. “What’s That you might ask?” It’s almost like having my very own straw attached to me, so I can still get all the nutrients I need everyday and I don’t even need to use a knife and fork!

My mums blend my meals for me every Sunday, so I have enough fresh fruit and veggies for the whole week! I don’t even have to eat my broccoli! Every night, I have special formula that gets fed into me through a pump, and my older brother thinks its pretty unfair because now I weigh more than he does and he is 12!

Every six months, we travel to Randwick in New South Wales, to the Sydney Childrens Hospital where I receive treatment to help me stay well.

When I grow up, I want to be a Doctor. Not just any Doctor, but a Surgeon, just Like Dr Vincent, who has been helping me for my entire life.

Rally for a Cause helps my family to make sure I get the all the help that I need so I can keep enjoying all the things I love, but as you can imagine, it can be pretty expensive catching aeroplanes and staying in hotels while we are there.

I love to Inspire others and encourage people to do their best always! Thankyou for helping my family and I so I can continue to inspire others and live my best life!